Medicaid Saves Lives was privileged to partner with Arkansas Advocates for Children and Families, Arkansas Citizens First Congress, and the Arkansas Chapter of the Academy of Pediatrics to host a celebration at the Capitol for Medicaid’s 52nd Birthday. Even if you missed it, you can still watch the festivities!
Tag: medicaidmatters
Senate pulls All-night Session to Vote on Skinny Repeal
The Senate is set to vote on a newly written bill, referred to as the skinny repeal, barely released an hour ago. They will vote around midnight.
Read the full text.
Even Senators dislike it, but they may still vote it through.

Senate Voted to Proceed: Now What?
Earlier today, the Senate voted 51-50 to proceed with debate over the health care bill. With only 2 opposing Republican votes, just 1 shy of what was needed, plus a tie-breaking vote from VP Pence, the motion succeeded. We now move toward serious Medicaid cuts that can’t be reversed once set into motion, and it will take all of us standing together to prevent it.

Data shows that any bill, amendment, or revision proposed so far will be detrimental to Medicaid recipients. We (MSL) oppose the per capita caps or block grants that have been proposed because they will shift great stress to state budgets and reduce the ability to give recipients the coverage they need. We oppose ending expansion because it will result in millions losing coverage. In addition, the aforementioned bills remove essential health benefits and pre-existing condition protections, which would be detrimental to all Americans, making coverage unaffordable if not unattainable for many.
As part of the AACF statement on how this vote will affect Arkansas, Arkansas Advocates for Children and Families said: “Today’s vote shows that we have more work to do. Despite an outcry from health care professionals, business owners, families, and even governors, many Senators have decided to move forward with legislation that will destabilize the entire health care system. Too much is at risk to continue down the current path. Children with special needs, elderly enrollees, and people with chronic conditions who rely on Medicaid will lose coverage. Health care for families that were able to purchase affordable coverage, many for the first time, is also at risk.
The people have spoken—any proposal that falls short of guaranteeing everyone affordable, comprehensive coverage, is unacceptable. Now, it’s time for Congress to listen. We ask that Senator Cotton and Senator Boozman commit to voting no on any bill that endangers the health of tens of thousands of Arkansans. Anything less is breaking their promise to all of us.”
Now that we understand the ramifications haven’t changed, here’s what will happen next:
- The Senate will debate for 20 hours. By rules, to be fair, Republicans and Democrats get equal time of 10 hours each.
- The Senate will probably vote a bunch of times on amendments and such.
- Then the Senate will vote on a finalized bill and send it to the House.
- The House will vote, and if it passes, they’ll send it to President Trump.
As you can see, if you oppose Medicaid cuts, you can’t give up. Not a single Democrat voted to proceed, and we only need a few Republicans to oppose to keep any bill from moving forward. We were only one opposing vote short. Take a breath, renew your determination, and communicate in any way you possibly can!
Email your Senators’ legislative aids!


Stand strong!
Take Action: Graphic to Share
The news changes like the wind. Are they voting or aren’t they? Repeal and replace or repeal without replace? No matter what’s happening with them, we need to continue to make our needs and wants abundantly clear.
Many are saying that they can’t get through to Senators via phone calls. Don’t stop calling because they are counting the calls. 866-426-2631
However, social media is a great way to publicly contact your Senators, especially since they won’t post their direct email addresses.
Share this graphic with them and tag them in your posts. Use hash tags like #BCRA or #ProtectOurCare to help others see your posts!

Making Sense of the Manuals for Public Comment
DHS released several manuals to the Medicaid website on July 13, 2017 that are available for public comment until August 11. Once public comment ends, these rules will be sent through the legislative committees and passed as law.
“In accordance with federal and state law, the Division of Medical Services of the Arkansas Department of Human Services must advertise and make available for public comment proposed new and amended rules and other documents, such as certain initial waiver requests and waiver renewals.”
However, they released over 60 documents actually, which may have left you feeling confused about which one needs your comment or what’s in them all. Here’s your guide to wading through the state terminology and legalese.
RULE #1: When you send in your comments, make sure to list the document that you wish to comment on!
RULE #2: Make sure you send your comments to the appropriate person.
Send your comments to Shelby.Maldonado@dhs.arkansas.gov, and as long as you’ve included the right document title, she will be able to direct it to the correct person.
- If you’re viewing this on a phone or tablet, you might want to turn it to the side (landscape) to view the width of the table well. The right 2 columns are what MSL has added to help with the list that DHS provided.
Instead of scrolling through the long table, which can be confusing, this list of topics can get you straight to what you want to see. Click the link to go directly to the corresponding manual in the table.
- DD Rule changes
- State Plan Amendment (9 documents)
- DDTCS/CHMS Hybrid Manuals (6 documents)
- DDS Community and Employment Supports (CES) Waiver Minimum Certification Standards (3 documents)
- DDS Community and Employment Supports (CES) Provider Manual (2 documents)
- DDS Policy 1086 – Human Development Center Admission and Discharge Rules Policy Manual
- PASSE (B Waiver)
- BH Rule changes
- Appeals changes
- DDS Policy 1076 changes (3 documents)
- ABLE Act (2 documents)
- Independent Assessment rules in the following manuals:
- new Independent Assessment manual
- Independent Assessment for Personal Care and Criminal Background Check Requirements for Providers
- ARChoices in Home Care Home and Community-Based 2176 Waiver Manual
- Child Health Services/Early and Periodic Screening, Diagnosis, and Treatment Provider Manual
- Home Health Provider Manual
- Hospice Provider Manual
- IndependentChoices Provider Manual
- Personal Care Provider Manual
- Private Duty Nursing Services Provider Manual
- Physician Provider Manual
- Rural Health Clinic Provider Manual
- Section I: All Provider Manuals
The following table will attempt to explain what each document is (memo, explanation letter, mark up with changes, or new manual), what it contains, and possibly some documents to assist you. Remember, the list of topics above can assist you in finding what you need much faster.
| Document Title | Document | Description | Assisting docs/info |
| Interested Persons and Providers Letter for DDS Standards for Certification, Investigation and Monitoring; State Plan Amendment 2017-011; Child Health Management Services provider manual update; and Developmental Day Treatment Clinic Services provider manual update | IPLtrSPA17-011.doc | memo | |
| (SPA011 – 1 of 15) | |||
| State Plan Amendment 2017-011 Attachment 3.1A 1i | SPA17-011-31A1i.doc | STATE PLAN UNDER TITLE XIX OF THE SOCIAL SECURITY ACT: AMOUNT, DURATION AND SCOPE OF SERVICES PROVIDED, CATEGORICALLY NEEDY (page as it will appear in new manual) |
|
| (SPA011 – 2 of 15) | Page 1i | ||
| State Plan Amendment 2017-011 Attachment 3.1A 1i with tracked changes | SPA17-011-31A1i-markup.doc | SAME MANUAL PAGE: mark up that shows changes | |
| (SPA011 – 3 of 15) | Page 1i | ||
| State Plan Amendment 2017-011 Attachment 3.1A 4A | SPA17-011-31A4A.doc | STATE PLAN UNDER TITLE XIX OF THE SOCIAL SECURITY ACT: AMOUNT, DURATION AND SCOPE OF SERVICES PROVIDED, CATEGORICALLY NEEDY (page as it wil appear in new manual) |
|
| (SPA011 – 4 of 15) | Page 4a | ||
| State Plan Amendment 2017-011 Attachment 3.1A 4A with tracked changes | SPA17-011-31A4A-markup.doc | SAME MANUAL PAGE: mark up that shows changes | |
| (SPA011 – 5 of 15) | Page 4a | ||
| State Plan Amendment 2017-011 Attachment 3-1B 2h | SPA17-011-31B2h.doc | STATE PLAN UNDER TITLE XIX OF THE SOCIAL SECURITY ACT: AMOUNT, DURATION AND SCOPE OF SERVICES PROVIDED, MEDICALLY NEEDY (page as it wil appear in new manual) |
|
| (SPA011 – 6 of 15) | Page 2h | ||
| State Plan Amendment 2017-011 Attachment 3-1B 2h | SPA17-011-31B2h-markup.doc | SAME MANUAL PAGE: mark up that shows changes | |
| (SPA011 – 7 of 15) | Page 2h | ||
| State Plan Amendment 2017-011 | SPA17-011-31B4b.doc | STATE PLAN UNDER TITLE XIX OF THE SOCIAL SECURITY ACT: AMOUNT, DURATION AND SCOPE OF SERVICES PROVIDED, MEDICALLY NEEDY (page as it wil appear in new manual) |
|
| (SPA011 – 8 of 15) | Page 4b | ||
| State Plan Amendment 2017-011 | SPA17-011-31B4b-markup.doc | SAME MANUAL PAGE: mark up that shows changes | 1. IA Public Notice 2. IA Manual Summary 3. IA fiscal Impact |
| (SPA011 – 9 of 15) | Page 4b | ||
| DDS Standards for Certification, Investigation and Monitoring – Redline | DDS-Stnds-Redline.doc | DDS STANDARDS for Certification, Investigation, an Monitoring for Center-Based Community Services | 1. Summary DDTCS-CHMS 2. Info |
| (SPA011 – 10 of 15) | entire manual, mark up that shows changes | ||
| DDS Standards for Certification, Investigation and Monitoring | DDS-Stnds-Clean.doc | DDS STANDARDS for Certification, Investigation, an Monitoring for Center-Based Community Services | |
| (SPA011 – 11 of 15) | entire manual, as it will appear | ||
| CHMS-2-17 Provider Manual Update Transmittal Letter | CHMS-2-17.doc | letter that explains which parts of the CHMS manual have been changed | |
| (SPA011 – 12 of 15) | |||
| CHMS-2-17 Provider Manual Update | CHMS-2-17up.doc | CHMS Manual mark up with changes. | 1. Summary DDTCS-CHMS 2. Info |
| (SPA011 – 13 of 15) | |||
| DDTCS-2-17 Provider Manual Update Transmittal Letter | DDTCS-2-17.doc | letter that explains which parts of the DDTCS manual have been changed | |
| (SPA011 – 14 of 15) | |||
| DDTCS-2-17 Provider Manual Update | DDTCS-2-17up.doc | DDTCS Manual mark up with changes. | 1. Summary DDTCS-CHMS 2. Info |
| (SPA011 – 15 of 15) | |||
| Interested Persons and Providers Letter for State Plan Amendment 2017-010, Outpatient Behavioral Health Services and Inpatient Psychiatric Provider Manual Updates and Residential Community Reintegration Program Certification | IPLtrSPA17-010.doc | memo | |
| (SPA010 – 1 of 8) | |||
| State Plan Amendment 2017-010 Attachment 3.1 A | SPA010-Attach3-1A.doc | STATE PLAN UNDER TITLE XIX OF THE SOCIAL SECURITY ACT: AMOUNT, DURATION AND SCOPE OF SERVICES PROVIDED, CATEGORICALLY NEEDY (page as it will appear in new manual – NO MARK UP AVAILABLE) |
|
| (SPA010 – 2 of 8) | Page 6c17a | ||
| State Plan Amendment 2017-010 Attachment 3.1 B | SPA010-Attach3-1B.doc | STATE PLAN UNDER TITLE XIX OF THE SOCIAL SECURITY ACT: AMOUNT, DURATION AND SCOPE OF SERVICES PROVIDED, MEDICALLY NEEDY (page as it will appear in new manual – NO MARK UP AVAILABLE) |
|
| (SPA010 – 3 of 8) | Page 5f17a | ||
| Residential Community Integration Program Certification | ResCommReintCert.doc | Residential Community Integration Program Certification | |
| (SPA010 – 4 of 8) | entire manual as it will appear NO MARK UP AVAILABLE | ||
| Inpatient Psychiatric (INPPSYCH-1-17) Provider Manual Update Transmittal Letter | INPPSYCH-1-17.doc | Letter that shows the changes to Manual Update for Inpatient Psychiatric Services for Under Age 21 | |
| (SPA010 – 5 of 8) | |||
| INPPSYCH-1-17 Provider Manual Update | INPPSYCH-1-17up.doc | Manual Update for Inpatient Psychiatric Services for Under Age 21 | |
| (SPA010 – 6 of 8) | entire manual as it will appear NO MARK UP AVAILABLE | ||
| Outpatient Behavioral Health Services (OBHS-1-17) Provider Manual Update Transmittal Letter | OBHS-1-17.doc | Letter that shows the changes to Manual Update for Outpatient Behavioral Health Services | |
| (SPA010 – 7 of 8) | |||
| OBHS-1-17 Provider Manual Update | OBHS-1-17up.doc | Manual Update for Outpatient Behavioral Health Services | |
| (SPA010 – 8 of 8) | entire manual, mark up that shows changes | ||
| Interested Persons and Providers Letter for Independent Assessment Manual | IPLtrAR_IA.doc | memo | |
| (AR_IA – 1 of 2) | |||
| AR Independent Assessment Manual | AR_IA_July_17.doc | New manual for Independent Assessment | 1. IA Public Notice 2. IA Manual Summary 3. IA fiscal Impact |
| (AR_IA – 2 of 2) | |||
| Interested Persons and Providers Letter for DDS Policy 1076 -Appeals | IPLtrDDS1076.doc | memo | |
| (1076 – 1 of 3) | |||
| DDS Policy 1076 with Tracked Changes | DDS1076-Appeals-markup.doc | DDS Policy APPEALS Manual | |
| (1076 – 2 of 3) | entire manual, mark up that shows changes | 1. Summary Appeals 2. Info Policy 1076 Appeals |
|
| DDS Policy 1076 -Clean | DDS1076-Appeals-clean.doc | DDS Policy APPEALS Manual | |
| (1076 – 3 of 3) | entire manual, as it will appear | ||
| Interested Persons and Providers Letter for DDS Policy 1086 | IPLtrDDS1086.doc | memo | |
| (DDS1086 – 1 of 3) | |||
| DDS Policy 1086 with tracked changes | DDS1086-HDC-markup.doc | DDS Human Development Center Admission and Discharge Rules Policy Manual | |
| (DDS1086 – 2 of 3) | entire manual, mark up that shows changes | 1. 1086 HDC Rules Summary
2. 1086 Info |
|
| DDS Policy 1086 | DDS1086-HDC.doc | DDS Human Development Center Admission and Discharge Rules Policy Manual | |
| (DDS1086 – 3 of 3) | entire manual, as it will appear | ||
| Interested Persons and Providers Letter for Medical Services Policy Manual Sections E-600 through E-670 and Appendix R | IPLtrABLE.doc | memo | |
| (ABLE – 1 of 2) | |||
| Medical Services Policy Manual Sections E-600 through E-670 and Appendix R | ABLE.pdf | Able Act Policy Manual: Eligibility Factors, Contributions, Withdrawals, Expenses, Exclusions, | |
| (ABLE – 2 of 2) | entire manual, as it will appear – NO MARK UP AVAILABLE | ||
| Interested Persons and Providers Letter for Community and Employment (CES) 1915 (c) Waiver, DDSCES-1-17 Provider Manual Update and Certification Standards for CES Providers | IPLtrDDSCES.doc | memo | C Waiver |
| (CES – 1 of 5) | |||
| DDS Community and Employment Supports (CES) Waiver Minimum Certification Standards | DDSCESCertStand-markup.doc | DDS Community and Employment Supports (CES) Waiver Minimum Certification Standards | |
| (CES – 2 of 5) | entire manual, mark up that shows changes | 1. Summary of Changes | |
| DDS Community and Employment Supports (CES) Waiver Minimum Certification Standards | DDSCESCertStand.doc | DDS Community and Employment Supports (CES) Waiver Minimum Certification Standards | |
| (CES – 3 of 5) | entire manual, as it will appear | ||
| Developmental Disabilities Services Community and Employment Supports (DDSCES1-17) Provider Manual Update Transmittal Letter | DDSCES-1-17.doc | Letter that shows the changes to Manual Update for Arkansas Medicaid Health Care Providers – DDS Community and Employment Supports (CES) | |
| (CES – 4 of 5) | |||
| DDSCES-1-17 Provider Manual | DDSCES-1-17up.doc | Manual Update for Arkansas Medicaid Health Care Providers – DDS Community and Employment Supports (CES) | |
| (CES – 5 of 5) | entire manual, mark up that shows changes | 1. Summary of Changes 2. Info – CES Waiver |
|
| Interested Persons and Providers Letter for Provider-Led Arkansas Shared Savings Entity (PASSE) Waiver and New Provider Manual | IPLtrPASSE.doc | memo | |
| (PASSE 1 of 5) | |||
| Provider-led Arkansas Shared Savings Entity Program – Phase I | PASSEWvr.pdf | PASSE Program Information | B Waiver 1. Summary of PASSE 2. Info & Financial Impact |
| (PASSE 2 of 5) | |||
| Provider-led Arkansas Shared Savings Entity Spreadsheet | SpreadsheetPASSEWvr.pdf | PASSE Information – Enrollment Projections, Costs | |
| (PASSE 3 of 5) | |||
| PASSE-New-17 Provider Manual Update Transmittal Letter | PASSE-New-17.doc | letter that explains Provider-Led Arkansas Shared Savings Entity (PASSE) Program manual | |
| (PASSE 4 of 5) | |||
| PASSE-New-17 Provider Manual Update | PASSE-New-17up.doc | New PASSE Manual | |
| (PASSE 5 of 5) | entire manual, mark up | 1. Summary of PASSE 2. Info & Financial Impact |
|
| Interested Persons and Providers Letter for Independent Assessment for Personal Care and Criminal Background Check Requirements for Providers | IPLtrIA.doc | memo | |
| (IA – 1 of 22) | |||
| State Plan Amendment 2017-009 with Tracked Changes | SPA17-009-markup.doc | STATE PLAN UNDER TITLE XIX OF THE SOCIAL SECURITY ACT: AMOUNT, DURATION AND SCOPE OF SERVICES PROVIDED, CATEGORICALLY NEEDY (mark up that shows changes |
|
| (IA – 2 of 22) | Page 10aa | ||
| State Plan Amendment 2017-009 | SPA17-009.doc | SAME MANUAL PAGE: as it will appear | |
| (IA – 2 of 22) | Page 10aa | ||
| ARChoices in Home Care Home and Community-Based 2176 Waiver (ARCHOICES-1-17) Provider Manual Update Transmittal Letter | ARCHOICES-1-17.doc | letter that explains changes to ARChoices In Homecare Home and Community-Based 2176 Waiver Manual | |
| (IA – 3 of 22) | |||
| ARCHOICES-1-17 Provider Manual Update | ARCHOICES-1-17up.doc | ARChoices In Homecare Home and Community-Based 2176 Waiver Manual | |
| (IA – 4 of 22) | entire manual, mark up that shows changes | ||
| Child Health Services/Early and Periodic Screening, Diagnosis, and Treatment (EPSDT-1-17) Provider Manual Update Transmittal Letter | EPSDT-1-17.doc | letter that explains changes to Arkansas Medicaid Health Care Providers – EPSDT Manual | |
| (IA – 5 of 22) | |||
| EPSDT-1-17 Provider Manual Update | EPSDT-1-17up.doc | Arkansas Medicaid Health Care Providers – EPSDT Manual change | |
| (IA – 6 of 22) | Section II, mark up that shows changes | IA required for certain home health clients 1. IA Public Notice 2. IA Manual Summary 3. IA fiscal Impact |
|
| Home Health (HOMEHLTH-1-17) Provider Manual Update Transmittal Letter | HOMEHLTH-1-17.doc | letter that explains changes to Arkansas Medicaid Health Care Providers – Home Health Manual | |
| (IA – 7 of 22) | |||
| HOMEHLTH-1-17 Provider Manual Update | HOMEHLTH-1-17up.doc | Arkansas Medicaid Health Care Providers – Home Health Manual change | |
| (IA – 8 of 22) | Section II, mark up that shows changes | background check changes | |
| Hospice (HOSPICE-1-17) Provider Manual Update Transmittal Letter | HOSPICE-1-17.doc | letter that explains changes to Arkansas Medicaid Health Care Providers – Hospice Service manual | |
| (IA – 9 of 22) | |||
| HOSPICE-1-17 Provider Manual Update | HOSPICE-1-17up.doc | Arkansas Medicaid Health Care Providers – Hospice Service manual changes | |
| (IA – 10 of 22) | Section II, mark up that shows changes | background check, IAs for personal care 1. IA Public Notice 2. IA Manual Summary 3. IA fiscal Impact |
|
| IndependentChoices (INCHOICE-1-17) Provider Manual Update Transmittal Letter | INCHOICE-1-17.doc | letter that expains changes to Arkansas Medicaid Health Care Providers – IndependentChoices Manual | |
| (IA – 11 of 22) | |||
| INCHOICE-1-17 Provider Manual Update | INCHOICE-1-17up.doc | Arkansas Medicaid Health Care Providers – IndependentChoices Manual changes | |
| (IA – 12 of 22) | Section II, mark up that shows changes | various changes included background checks | |
| Personal Care (PERSCARE-1-17) Provider Manual Update Transmittal Letter | PERSCARE-1-17.doc | letter that explains changes to Arkansas Medicaid Health Care Providers – Personal Care manual | |
| (IA – 13 of 22) | |||
| PERSCARE-1-17 Provider Manual Update | PERSCARE-1-17up.doc | Arkansas Medicaid Health Care Providers – Personal Care Manual changes | |
| (IA – 14 of 22) | Section II, mark up that shows changes | ||
| Private Duty Nursing Services (PDN-1-17) Provider Manual Update Transmittal Letter | PDN-1-17.doc | letter that explains changes to the Arkansas Medicaid Health Care Providers – Private Duty Nursing Services manual | |
| (IA – 15 of 22) | |||
| PDN-1-17 Provider Manual Update | PDN-1-17up.doc | Arkansas Medicaid Health Care Providers – Private Duty Nursing Services Manual changes | |
| (IA – 15 of 22) | Section II, mark up that shows changes | background checks | |
| Physician (PHYSICN-3-17) Provider Manual Update Transmittal Letter | PHYSICN-3-17.doc | letter that explains changes to the Physician/ Independent Lab/CRNA/Radiation Therapy Center manual | |
| (IA – 17 of 22) | |||
| PHYSICN-3-17 Provider Manual Update | PHYSICN-3-17up.doc | Physician/ Independent Lab/CRNA/Radiation Therapy Center manual changes | |
| (IA – 18 of 22) | Section II, mark up that shows changes | IA requirement 1. IA Public Notice 2. IA Manual Summary 3. IA fiscal Impact |
|
| Rural Health Clinic (RURLHLTH-1-17) Provider Manual Update Transmittal Letter | RURLHLTH-1-17.doc | letter that explains changes to the Rural Health Clinic Services manual | |
| (IA – 19 of 22) | |||
| RURLHLTH-1-17 Provider Manual Update | RURLHLTH-1-17up.doc | Rural Health Clinic Services manual changes | |
| (IA – 20 of 22) | Section II, mark up that shows changes | IA requirement 1. IA Public Notice 2. IA Manual Summary 3. IA fiscal Impact |
|
| Section I (SecI-3-17) All Provider Manuals Update Transmittal Letter | SecI-3-17.doc | letter that explains the changes to the Arkansas Medicaid Health Care Providers – All Providers manual | |
| (IA – 21 of 22) | |||
| SecI-3-17 All Provider Manuals Update | SecI-3-17up.doc | Arkansas Medicaid Health Care Providers – All Providers manual | |
| (IA – 22 of 22) | Section II, mark up that shows changes | IA requirement 1. IA Public Notice 2. IA Manual Summary 3. IA fiscal Impact |
|
Medicaid Saves Lila

This is my sweet girl, Lila. She’s active and intelligent. She loves to swing, eat blackberries, and paint. Don’t you dare turn your back on her because she’s mischievous too! She loves her friends, family, and kitty-cats. She is absolutely the most wonderful thing I’ve ever done with my life, and she just so happens to have Down Syndrome.

She might smile a lot, but her life hasn’t been easy. Born almost a month early due to multiple complications, Lila spent some time in the NICU. She’s overcome multiple illnesses and surgeries, including open heart surgery soon after her first birthday and many others since. In fact, we have received 2 new diagnoses this year alone, and she’ll have at least one surgery.

My husband and I are proud Arkansans. We’re educated, hard-working, tax-paying citizens. At the time of Lila’s birth, we lived in another state. Despite the fact that we both had good jobs and primary insurance coverage, we struggled to provide for her needs. When we moved back to Arkansas, Lila was significantly delayed in many areas.
Our friends told us about TEFRA, a type of Medicaid funding that provides for disabled children and that requires the family to pay a premium. Our primary insurance pays first for all that it will cover, and Medicaid makes sure that Lila doesn’t go without the rest. We gladly pay a monthly fee for this essential assistance!
Lila now receives medical treatments that she needs from specialists and Occupational, Physical, and Speech therapy. She attends a school where she is loved and accepted, and they practice important skills in the classroom to prepare her for mainstream Kindergarten. Lila is constantly learning the necessary skills to be independent: speaking new words, learning to feed herself, to dress herself, and to climb stairs. One of my favorite moments was the first time I ever heard her say, “Ma Ma.” Can you imagine waiting 4 years to hear that?
We never expected to need Medicaid. Even though we’d paid taxes for years for Medicaid, we didn’t know that a person’s life can change drastically in a moment – a car accident, a stroke, a job loss, a cancer diagnosis, a chromosomal difference – to cause them to need Medicaid. We thought that if we worked hard enough, we could take care of ourselves and Lila. But no matter how hard we work or what we give up, we just can’t afford to provide for all of Lila’s needs. Now, because of Medicaid, Lila is thriving, and we’re not being crushed under the weight of Lila’s ever-growing medical debt. We have hope that she will continue to develop and someday be a valued, contributing member of society. We are incredibly thankful for Medicaid.
We tell everyone we can how essential Medicaid is! Lila has visited the Capitol and state lawmakers multiple times to represent herself and friends like her. Since she can’t speak much yet, my husband and I tell them how much Medicaid is literally saving lives. I can’t wait for the day that Lila will tell them herself. She brings a beauty and light to this dark world, and we will never stop fighting for her!

Revised Senate health care bill: Where are we now?
A revision of the BCRA Senate Health Care bill has been released, but what’s different? We have the one-stop-shop for understanding the bill for yourself.
Some reports say that they want to vote as early as Tuesday. Get to reading and then get to calling!
Every call matters. Here’s the number for Senators across the nation: 866-426-2631
Find your states US Representative & contact his/her office
Find your state’s US Senator & contact his/her office
Read the new revised bill to make sure you discover everything for yourself.
Check out these resources to guide you:
- Video explains the changes
- What’s in the bill now
- Chart that compares bills
- Chart with key differences
- What you need to know
- 4 Key changes
- What Governors Think About the Bill
- Do any Governors support the BCRA?
- Do all Republican Senators support it?
- Why doctors oppose it
- How the revision affects Arkansas
What was the original bill?
- guide to what the bill says
- simple chart that compares the ACA (Obamacare), AHCA (House bill), and the BCRA (Senate bill).
- data and comparison of the ACA/AHCA/BCRA
- another chart to compare the bills
- A video walk-through guide of what it says with page numbers so you can investigate for yourself
- explanation of block grants and per capita caps
- research of why it affects everyone
- 10 Reasons it’s bad for AR
- How it will affect rural AR
Full text of the original bill. Click on the image below, and use the resources above to help you.

How the BCRA will affect you, even if you don’t receive Medicaid
The topic of health care is not only in some ways oppressive on our minds but also overwhelming these days. Months ago, the House wrote the American Health Care Act (AHCA) in an effort to repeal and replace the Affordable Care Act (ACA), and they passed it on to the Senate. Then, the Senate must have found fault with the AHCA because they wrote their own version of the bill called the Better Care Reconciliation Act (BCRA). If the Senate passes their bill, it will have to go to the House for their approval. We have seen months (years!) of coverage on the subject of health care, and it’s downright confusing at this point.
Let’s try to clarify some of the confusion by pulling a few articles together to show what will change with the Senate health care bill, the BCRA. (The AHCA doesn’t matter if the House approves the BCRA.) This research will show that nearly everyone who isn’t extremely wealthy will be affected negatively by the bill as it stands proposed today. If you care about, or are affected by, any of the following categories, you can expect changes to come to you and your family if this bill were to pass.
1. Medicaid Funding
“[T]he Senate bill would radically restructure all parts of Medicaid—not just the expansion provided under the Affordable Care Act.” 1
“The cumulative impact: a $772 billion spending cut over 10 years, versus current law, and 15 million fewer people enrolled in Medicaid in 2026.” 2
2. Essential Health Benefits
“But another change might have more far-reaching effects: eliminating the Affordable Care Act’s ‘essential health benefits,’ or EHBs. That shift could affect almost everybody, including the 156 million Americans who receive health coverage through their employers.” 5
Here’s a rundown of what they are: 4, 5, 6
- Outpatient care — scheduled doctor visits, (outpatient care you get without being admitted to a hospital)
- Emergency room trips — ER visits and ambulance trips.
- In-hospital care — All care people get as hospital patients, such as surgery.
- Pregnancy, maternity and newborn care — before and after birth
- Mental health and substance abuse disorder services — (this includes counseling and psychotherapy)
- Prescription drugs
- Rehabilitative services and habilitative services – help recovering from an injury or illness, but also treatment (therapy) for kids with autism or cerebral palsy.
- Lab tests
- Preventive services — vaccines, cancer screenings, etc.
- Pediatric services — including dental and vision care for children.
3. Pre-existing Conditions Protections
“The BCRA retains the popular ACA provision that people with pre-existing conditions cannot be charged more for insurance because of their health status. However, weakened essential health benefits would hurt people with pre-existing conditions.” 1
“The Senate bill would retain some limits. It wouldn’t, for example, allow states to waive the prohibition on discriminating on the basis of preexisting conditions. But it would allow states to remove caps on out-of-pocket spending for exchange plans.” 3
4. Subsidies & Taxes
“One major difference is that the Senate bill provides subsides only up to 350% of the federal poverty level starting in 2020; the ACA currently provides subsidies up to 400%. In other words, while individuals earning up to $47,550 qualify for help under the ACA, only those earning up to $41,580 would qualify under the Senate plan. This means far fewer people will qualify for aid.” 1
Sources:
1 4 Things to Know About the Senate’s Health Care Bill
2 4 ways you probably didn’t know the Republican bill changes Medicaid
4 What Are ‘Essential Benefits’ in GOP Health Care Bill Debate?
5 The 10 ‘essential’ benefits that could be eliminated under the GOP health care plan
Allen
Allen Shimkus
Age 4
Diagnosis: Agenesis of the corpus callosum
(ACC) is a rare birth defect (congenital disorder) in which there is a complete or partial absence of the corpus callosum. It occurs when the corpus callosum, the band of white matter connecting the two hemispheres in the brain, fails to develop normally.
Allen NEEDS PT OT AND SPEECH THERAPY to teach his brain to do everything from chewing food to walking.
My 4 year old son Allen (pictured here) can not fully dress himself or walk or even speak but he has the potential to do all !!!! Please help him !!
Ari
My sweet boy, Ari, has had 2 shunt revisions, ETV placement and will be having a major skull reconstruction surgery in 2 months. He is still working on head control as well as feeding. He has overcome so much and he has so much further to go … without Medicaid he would not survive. Being a single parent, the support given through Medicaid help ensure that he will receive all the healthcare support that he so desperately needs. I work full time and have private insurance personally, he is also on my plan, but TEFRA helps allow for him to have continued therapy, the wheelchair that helps him participate in all community/school activities and surgeries that he needs to survive and thrive. His birthday is this week and I can’t believe he will be 4!!




